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A Small Fly in the Ointment

I am still feeling wonderful.  It’s so odd to not be in pain.  I’m not sure I realized just how much pain I was in until it was relieved.

My hands, however, are a bit of a mess.  I still have that trigger finger, two trigger thumbs, a pinkie with a messed up tendon, and a few other issues.  None of this is horrible, but I’m paying attention since I work with my hands.

So I will take my wonderful-feeling self to occupational therapy in hopes that they can improve my hands.  I want to halt any damage and keep use as long as possible.

Life is still awfully good!


It’s Really REALLY Real

The fibromyalgia pain has lessened significantly.

The Relapsing Polychondritis is quiet.  The awful effects from my infusions are nearly gone.

My trigger finger is still triggering, but whatever.

My terrible, horrible, no good, very bad knee is holding.  I still can’t run stairs and pivoting is an incredibly bad idea, but it’s holding.

Basically, I feel better than I’ve felt in over a year.  I’m hopeful that the next few months will be equally good and might even improve.  I could be very, very wrong, but hope feels wonderful.

I hope.


Is This Real?

I am recovering from a particularly brutal round of infusions.  Nausea, dizziness, and extreme fatigue.  Good times.

In between my treatments, I started medication for my fibromyalgia.  This causes nausea, dizziness, and lack of appetite.  Did you notice any repeats?

Basically, I have felt quite awful for a few weeks.  I’ve lived on crackers and peppermint and lost about 5 pounds each week.  Every meal feels like a battle.

I allowed myself a few weeks at home for treatment and recovery but that time is now over and I’m back on the road.  I traveled both Wednesday and Thursday.  I was tired, nauseous, and dizzy both of those days.  This morning I just about toppled out of the shower from dizziness.  Happily I caught myself before breaking any bones.  I managed to eat a few bites of breakfast.  I worked all morning, ate an actual (small) lunch, worked all afternoon, ate an actual (small) dinner, and am now ready for bed.  I wasn’t nauseous all day!  Also, the medications for the fibromyalgia seem to be working.  I haven’t wanted to curl up in a ball on the floor and weep from the pain in over a week!

Is this real?  Am I turning a corner?  Even if this was only a one day reprieve, I’m over the moon.

Keeping Score

I try to take things one at a time, but sometimes they gang up on me.  I have to give my husband the scorecard of what illnesses/injuries are attacking me and who is winning (usually THEM, not me) at any given time.

Here’s today’s scorecard:

Relapsing Polychondritis — tie
The disease is quiet and that. Is. AWESOME!   I haven’t had a flare up since July/August or thereabouts.  Score one for me.  I just finished my last infusion for this round.  This month of treatment has been much more dreadful than any of the previous ones.   Score one for RP.  Splitting headaches, not being able to get my head off the pillow, dizziness, nausea, etc.  I think I’m winding down on the symptoms and will have 16 blessed weeks before I have to do this all over again.  YAY!

Fibromyalgia — tie
About 10 days ago I cried “Uncle!” and started taking drugs for the pain.  The drugs make me tired, dizzy, nauseous, and unhungry (I couldn’t make ‘lose my appetite’ fit into the sentence structure).  Score one for Fibro.  Over a week later, I’m starting to get the benefit of these drugs.  Today is a perfectly awful weather day, one that would typically leave me curled in a ball waiting to die.  While today isn’t my favorite day ever, I’m functioning.  Score one for me!  I’ve lost 7 pounds from not eating.  The doctor thinks it’s a problem; I say “Thanks for the weight loss.”  She wants me to call her when it gets bad.  I won’t declare it bad until I’ve achieved my goal weight, so I’ll keep quiet for a year or two.  Score = undecided.

Trigger finger — I lost
I have a trigger finger that leaves me looking like Spider Man shooting his web.

I had a cortisone injection yesterday*, but it hasn’t helped.  So far, I’m losing.  I can have one more injection and then I’ll need surgery.  Since I work with my hands, I choose to not think about that right now.  It’s not too much trouble to reach over with my other hand and move my ring finger out of the way every time I want to work, open a door, type, hold a pencil,…

My Terrible, Horrible, No Good, Very Bad Knee — I’m winning for now
My grinding knee isn’t currently grinding.  I can walk down stairs almost normally.  I can walk upstairs almost normally most of the time.  I’m far from fine, but only stairs are a problem and then only sometimes.  This is a temporary victory.  The knee is bad and will only get worse, but I enjoy being able to ignore it for now.

* Fun Story:  As the doctor was preparing to give me the injection yesterday, she said, “This is going to hurt.”  After she stuck the needle in my hand, she said, “This is going to hurt more,” and depressed the plunger.  As she was bandaging my hand, she said, “You’re tough!  Most people scream when I do that.”  Hear. Me. Roar!

Happy To Be Here

My latest article is on The Mighty this morning.  Click HERE.

I’m dreading my day at the infusion clinic and my article about “Happy to be Here” is online.  The irony.  It burns.

Keeping Score

New Meds:  1
Me:  0



I give up.  I give in.  After six months of living in nearly constant pain, I am agreeing with the doctor and will start taking yet another daily medication.

I don’t want another medication.

I don’t want another set of side effects.

Mostly, I don’t want to get dressed and go to the pharmacy.