Fun With Infusions
Yesterday, I finished my second (last) infusion of this round of treatment. The first round made me angry. I slept 15 hours one night. I don’t want to “waste” time recovering from infusions! I had to fly across the US for work a between my infusions and that made me angry, too. I was angry that it’s flu season and there’s a 700% increase in cases over this time last year. I was angry that I had to fly like this:
I was angry that they served wonderful meals at my conference and I was too nauseous to eat them. I was angry that I couldn’t shake anyone’s hand or hug any of my friends (I work with a bunch of huggers). I was exhausted after traveling, thank you Relapsing Polychondritis, and had an awful day my first day home. The next day I had another infusion and am starting all over again, which also made me angry.
Generally, I’m a good sport about the limitations I face because of this disease. I think this is all bothering me because I am basically losing the entire month of January. January is the month for New Year’s Resolutions and fresh starts and new ideas and plans. I love all of those things!!! I have so many ideas and plans and things I want to do and this stupid disease is getting in my way.
The anger is always short-lived, but it is there. Most of the time I’m quite content with my life. I promised myself to write the truth of this disease on this blog, so I had to talk about the bursts of anger.
More often than the anger, though, is the humor.
After my infusion last night, I was exhausted from the treatment and wired from the huge bag o’steroids they gave me in my IV. I went to bed and spent two hours yawning and dealing with a racing heart. When my husband came to bed a few hours later, he told me the funniest joke ever: “Just go to sleep.”
Hahahahahah! gasp. Hahahahahaha!
He knows how wired I get from the steroids (think 10 cups of espresso every hour for days) and was trying to be cute. I tried to not toss and turn too much so that poor man could at least get some sleep. I finally dozed off around 4am and slept fitfully until a 9:30 am conference call that I, like a princess, participated from whilst remaining in bed.
I’ve been awake for a few hours, accomplished a few small tasks (like laundry — I had no clean clothes left!), and am ready to return to bed where I will likely sleep for 15 hours. This is such a waste of a month, but the treatments are working and giving me 9 fairly normal months each year compared to 12 completely awful months with my health steadily declining.
It feels like I’m throwing a tempter tantrum and I should just maybe grow up a bit.
You should allow yourself a moment or two to throw a temper tantrum—you certainly have earned it. Know I keep you in my prayers…..sending germ free, gentle hugs!