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Overwhelmed and Humbled

October 14, 2017

My Relapsing Polychondritis has been quiet for about half a year now.  I’m so grateful and loving living my life.  My biggest problems are the side effects of my medications.  How cool is that?

In the 6 weeks since I posted my video about my disease, about 10K people have viewed it.  I’ve received many positive comments that have warmed my heart.  Recently, though, I was completely overwhelmed by an in-person meeting.  An acquaintance was recently diagnosed with a different disease.  Although the diseases are different, the reality is the same:  we have progressive diseases that impact our quality and length of life.

The overwhelming and humbling part of this story is that she watched my video and told me that it inspired her to know that someone with a serious illness is still leading a productive life, albeit with modifications.  I never meant to inspire anyone; I simply wanted to tell my story.

I kept my story quiet for 5 years.  That’s a long time, but that’s when it finally felt right to tell.  If anyone reading is keeping a story to themselves, I want to add to the chorus of voices letting you know that your story can help others.  When the time is right, share your story.

1Corinthians 1: 3-4
Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.


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  1. Barb permalink

    Love you💗

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