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Checking In after my Check Up

January 7, 2017

I had a check up with my specialist today.  I thought we’d cover three main topics:

  1.  Changing, adding, altering my exiting medication for Relapsing Polychondritis
  2. Add a medication for Fibromyalgia
  3. Talking about my terrible, horrible, no good, very bad knee

That’s pretty much what happened.  Here are the results:

  1.  We talked about some options but are leaving this as is for now.  She wants me to add a medication that could help with the joint pains.  I don’t want to add medications because the biggest joint pain I have is item #3 and we’ll deal with that separately
  2. We talked about some options but won’t add another medication until the Fibromyalgia flares up again/more often.  My choice.
  3. Now, for the knee:  the doctor inspected my knee as I bent it.  She grimaced, audibly groaned, and said “That’s not good.”  We talked a bit and then she injected my knee.  Getting an injection in my knee wasn’t even on my “things to worry about” list!  I had Xrays taken and we’ll talk again after she sees more of what is going on.  I told her how afraid of surgery I was just to let her inside my head a bit.  I have a feeling I’ll eventually have a knee replacement which is icky and gross and painful and time-consuming and work-stopping and I don’t want to do this at all.  But that’s not the bad part.  I don’t want to be intubated because of the risk to my trachea (tracheas are made of cartilage, RP attacks cartilage, and intubation could be the end of a working trachea for me).  Being intubated could be the start of a new life for me — one where I permanently breathe through a hole in my neck.  It’s not an irrational fear; in fact, it’s an extremely rational fear even though there’s not a high risk of it happening.

Today’s appointment could have gone better but it could also have gone worse.  These are just new facts that I need to make a part of my life.

I’m in my hotel room tonight processing all of this information.  I’m trying really hard to save all of the worries for their proper days.  Today’s worries are “Will my knee react well to the injection?” and “Ice my knee.”  I feel like such a jock when I say that!

If you want to see why I didn’t need caffeine today, I can show you a photo of the 14-foot needle she jabbed repeatedly into my knee.  OK, it was really much smaller than that, she only jabbed me once, and it was over in less than 10 seconds.  I still feel like a hero.

Do you want to see the photo?  If you do, scroll down.  If you don’t want to see the photo, click away and come back for my next blog post.

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Warning:  I’m posting the photo in

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One Comment
  1. Cyn permalink

    Hey,there is a stent now for the trachea if RP has started to damage it. If there isn’t any damage, then no worries. Also, you can check to see if there is a way for you to have the surgery without being intabated.

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